Living with cirrhosis: risk factors, life expectancy and tips for caregivers.

Cirrhosis is a serious chronic progressive disease that affects the liver.

The on-going disease destroys the liver cells called hepatocytes.

As the disease progresses, the liver becomes scarred. And this scarring ultimately leads to liver dysfunction.

Although cirrhosis can be managed and slowed down, it is a serious illness that can lead to death.

Living with cirrhosis: what causes cirrhosis?

Most people associate cirrhosis with alcoholism.

And while this is a major risk factor for the disease, it’s not the only reason a person might have cirrhosis.

Other causes of cirrhosis include:

• As a complication of a liver infection (hepatitis)
• Exposure to hepatoxins (or chemicals that are toxic to the liver other than alcohol)
• Severe, right-sided heart failure which results in an enlarged and fluid-filled liver

Thus if you have a loved one who has heart disease or has had hepatitis in the past, these could serve as risk factors for cirrhosis too.

How long can you live with cirrhosis of the liver?

Surviving cirrhosis depends on multiple factors including age, the overall health of the person and the cause of cirrhosis.

Thus how long a person can live with cirrhosis will differ from one person to the next.

There are four stages of cirrhosis.

The four stages of cirrhosis

• During stage 1, patients lack energy and constantly feel tired. The liver is inflamed at this point and the individual may have a swollen abdomen. Cirrhosis can be reversed at this stage if a doctor detects it early and the patient makes the right lifestyle changes.
• During stage 2 of cirrhosis, the pressure in the veins surrounding the liver begin to rise. This happens because of an obstruction in blood flow to the liver. This is called portal hypertension. With reduced blood flow and increasing scar tissue, cirrhosis could be slowed at this stage but it may not work.
• Ascites – or fluid accumulation in the belly area – develops during stage 3 of cirrhosis. At this point, the veins are congested and so a lot of fluid gets trapped in the abdomen. More scar tissue develops in the liver. Other symptoms like itchiness, lack of sleep and weight loss happen at this stage. Jaundice also happens at this stage. Jaundice is a yellowing of the skin and tissues that happens because the liver can no longer break down a substance called bilirubin. At stage 3, cirrhosis is irreversible. And at this point, the individual becomes a candidate for a liver transplant.
• The symptoms associated with stage 3 cirrhosis are similar to stage 4. During the final stages of cirrhosis of the liver, confusion, personality changes and hand/muscle tremors become common.

What can you do as a caregiver?

At stages 1 and 2 of cirrhosis, we can still do a lot to slow down the disease.

You can help your loved one make lifestyle changes like:

• Quitting alcohol
• Exercising regularly
• Eating a balanced diet of meals
• Restricting sodium and fluid intake (especially when ascites starts)
• Following medication regimen that is prescribed by a qualified medical provider
• Quitting opioid and narcotic intake
• And even in following medication regimen, make sure you are reading labels to ensure medication will not harm your loved one’s liver.

During stages 3 and 4, cirrhosis is not reversible.

At this point, you can mainly provide supportive care to your loved one as they wait to get a liver transplant.

• For a loved one who is confused, provide a safe environment so they don’t hurt themselves.
• Elevate the head of the bed while they sleep. This reduces shortness of breath.
• Monitoring your loved one’s level of consciousness.

During these stages, it might be time to consider working with professional caregivers so that your loved living with cirrhosis can get the proper care they need.

What is a durable power of attorney and why do you need one?

We’re living through a pandemic.

It is more important than ever for seniors to think about what kinds of medical decisions you want to be made for you in case you cannot make them yourself.

A medical durable power of attorney is document that gives someone else the power to make decisions on your behalf. Of course, this would be in a scenario where you cannot make those decisions yourself.

Although COVID-19 can affect people of all ages and different demographics have recovered from the illness, it is important for older adults to clearly state in writing, who can make decisions for them in case they’re unable to do so.

Even in the absence of COVID-19, accidents, illness and age-related dementia call for older adults to prepare a durable power of attorney.

Selecting a durable power of attorney for healthcare

Nobody can dictate who you choose as your durable power of attorney.

However, we recommend that you choose someone you trust and who is reliable.

It is best if you can work with a lawyer to draft the legal document when you’re appointing the power of attorney.

Can I name more than one person as a power of attorney?

If you live in the United States, you can name more than one person as your durable power of attorney.

However, it is important to specify exactly what each of their roles in decision-making will be.

And whether or not one decision supersedes another should they have conflicting ideas on a medical decision.

We highly recommend that you have a conversation with your lawyer so you can understand the pros and cons of choosing one or multiple powers of attorney.

What happens after I name my medical power of attorney (POA)?

You will work with your lawyer to draft the legal document.

Once it is finished and all the needed signatures are on your document, you can save the document in different places.

• Your lawyers will have a copy.
• You can save a copy in your home in a place where your spouse or named power of attorney knows.
• If you have a personal doctor, you could also ask them to keep one with your medical records.

Having a durable power of attorney long before you need it, can prevent family misunderstandings.

And it will prevent a court of law (instead of your loved ones) from making crucial medical decisions for you.

Also note that, a POA may be called a “healthcare proxy”, “agent” or “healthcare surrogate” depending on where you live.

Read this post where we talk more extensively about estate planning for older adults.

Your elderly loved one is bleeding from the nose and you are worried.

What could be the issue? Why are they experiencing nosebleeds so much?

Nosebleeds in the elderly can happen for the following reasons.

• Dry weather that dries up the nostrils
• Sinus infection
• Aspirin use (if your loved one takes aspirin as part of their medication regimen)
• Blood thinners
• A foreign body in the nose
• Allergies
• Even nasal sprays that treat allergies can also cause nosebleeds

Most of these are not a cause for alarm. And usually, you can resolve a nosebleed by getting rid of the precipitating event.

For most older adults, an occasional nosebleed may be nothing to worry about.

But regular nosebleeds for an older loved one could point to more serious issues like a severely injured nose (due to a fall or another type of accident), coagulation disorders, heart problems, arterial hypertension and some types of cancers.

To stop a nosebleed:

• Get your loved one to sit down and lean forward.
• Pinch the soft part of their nose (or direct them) just above the nostrils and hold it for 10 to 15 minutes.
• You can also place an ice pack wrapped in a towel (or frozen vegetables) over the bridge of their nose.

If a nosebleed lasts for longer than 20 minutes, you should seek immediate medical attention.

Nosebleeds in the elderly – what you can do as a caregiver

Like I mentioned before, you can treat occasional nosebleeds by treating what caused it. Here are steps caregivers can take to treat nosebleeds.

1. Make sure your loved one is well-hydrated especially during colder and dryer months. Around winter time, the weather is colder and the air is dry. People tend to have more nosebleeds at this time. Making sure your loved one is hydrated will keep their lips and nose hydrated and prevent bleeding.
2. A sinus infection should be treated with the right medications to make sure it does not cause other problems. See a doctor about proper treatment.
3. If your loved one is on aspirin or blood thinners, find out from your loved ones’ doctor what they would recommend to prevent and stop the bleeding.
4. Minimize the probability of falls around the home to prevent injuries.

Beyond these, it is always to watch out for other changes that have accompanied the nosebleeds.

This will give you clues as to the actions you should take and when it is time to see a medical professional.

The caregiver and the pandemic

We couldn’t have made up what is going on in the world right now – even in our best movies.

And we know you are feeling the pinch as a caregiver.

Perhaps, the COVID-19 pandemic has meant you have to cut your hours at work.

Maybe, the people who were helping you taking care of your loved one are now having to keep their distance.

And it certainly doesn’t help that the number of COVID-19 cases around the world keeps going up.

So how do you take care of yourself as a caregiver during this time?

In today’s post, I will offer some suggestions on what you can do to cope with the current crisis.

The caregiver and the pandemic – Taking care of yourself during this time

Dealing with unemployment

If the current crisis has led to losing your job, here are a few paths you can take.

1. File for unemployment quickly in case your period of unemployment extends beyond what you expect.
2. Even though there have been mass lay-offs in certain industries like travel and tourism, some industries are looking to bring on thousands of workers during this season. Grocery outlets, pharmacy chains and hospitals are hiring staff to keep up with the current demand on these sectors. Start applying now.
3. Talk to your utility companies and credit card companies. Several companies are now issuing leniency clauses that state that you will not be penalized for late payments or nonpayment for your utilities or credit cards. I imagine calling these companies right now will be a long phone wait. So, if you have access to the internet, I recommend you try to get in touch with the company that way to discuss your situation. There is also now relief for you if you’re paying off student loans. Call your student loan servicers and talk to them.
4. To protect older adults, Medicare recently approved telehealth benefits for older adults. This way, older adults can get the care they need from home. If you care for an older adult, call your loved one’s doctor to make sure they offer it and then take full advantage.
5. Don’t give up.

Handling the emotions that come with uncertain times

These are unprecedented times.

It is alright to voice your feelings or even to cry. Care-giving is hard. Having to do it in the current environment is even harder.

Because of physical distancing, mental health professionals have had to move their services online.

This is a great opportunity to chat with one so they help you discover coping tools you can use.

These guidelines by the National Alliance on Mental Illness (NAMI) is helpful for finding the right mental health professional.

If you do indeed have one or two people helping with your loved one, make sure they are observing increased hygiene practices.

Any caregivers who come from an agency, need to be washing their hand before and after they touch your loved one.

If they are sick, they should be staying at home and a replacement should be provided.

If someone gets sick

If someone in your household gets sick during this time, call the hospital first.

There are triage nurses who will speak with you to determine if you (or your loved one) should come in to the hospital.

Let’s continue to stay safe.